My name is Amy Lynn Sabo.
UPDATE!
In 1998 I cofounded and maintained the lmbbs national network which was a affiliate with the foundation fighting blindness but, was dismantled in the summer of 2006 due to many personal and professional issues.
But, in the winter of 2000 I decided to go ahead and take the road of obtaining a college degree. First attended Muskegon community college which my emphasis was in many things. They were first with computer science and then marketing.
I felt comfortable and, I thought that at the time that I wanted a associates degree but, I wanted so much more than just an associate’s degree; I wanted my bachelor’s degree in communications. I continued to be active in the nfb as well too.
In the summer of 2003 I decided to relocate from my home state of Michigan to Denver, Colorado to attend the university of Colorado at Denver and then metro state college of Denver in communications. Due to personal issues in my life I knew that college wasn’t the thing for me. So, I’m now pursuing my career field in finding employment in the public relations field in either nonprofit since I have done sense work in that field for the past 10 years for both the foundation fighting blindness and the nfb I have also done work in the media relations field with a emphasis in internet radio. I have discovered this kind of work which I truly love through my best friend who lives in new York and is a d.j. himself.
I have many dreams and plans for the future involving public relations work in these fields and, I also wanted do so much more in other fields too which I’m pursuing on for the 2012 year.
I was born on May 12, 1975 in St. Joseph, Michigan. I was diagnosed with Bardet-Biedl Syndrome when I was a baby.
The doctors knew that there was something wrong with me because I was born a large baby and had extra fingers and toes. These were removed while I was still an infant.
My parents knew something was wrong and took me to the University of Michigan when I was just 6 months old.
I started wearing glasses at the age of 5 and started getting nightblindness when I was 8.
I attended public school and the teachers knew I had vision problems, but they could not make the right accommodations for my needs.
In high school I was diagnosed with retinitis pigmentosa (RP). I was 16 years old at the time. I started seeing a teacher for the visually impaired. She wanted me to try different adaptations like braille, books on tape, and to start orientation and mobility training, but I refused it. I just wanted to be a normal teenager!
After high school I started to adapt to my RP. I went to the Michigan Commission for the Blind Training Center and met other people who are visually impaired.
Today my life is very complete. I have attended many conferences like the Foundation Fighting Blindness Visions Conferencss and the National Federation of the Blind National and State Conferences.
I work 3 days a week for the Disability Awareness Council. This is an agency that deals with people who have different disabilities.
I hope that my story and my pictures will make you feel that you are not alone!